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Netizens step up to help woman suffering a rare disease that 'melts' her face

By yckim124   Friday, October 21, 2016   178,742   658   40

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The shocking yet heartbreaking story of Shim Hyun Hee (33) has touched the hearts of many netizens. 


On the October 20 broadcast of 'Capture that Moment - How is that Possible', Shim Hyun Hee's difficult life living with neurofibromatosis went public. 


SEE ALSO: Thai women forced into prostitution after coming to Korea on a 'plastic surgery travel package'



Since the age of 2, Shim suffered glaucoma, which eventually led to complete blindness when she turned 13 years old. Then, at age 18, Shim's face started to stretch down or "melt" while tumors started to grow all over her face. Shim also does not have part of her skull, which left a giant hole in the back of her head. Furthermore, Shim's physical size is the same as an elementary student because of her difficulty in consuming food. 


Shim's father revealed that Shim has undergone multiple surgeries; however, none of them managed to help her improve, since neurofibromatosis is known to be a rare disease with no cure. Another reason for the lack of treatment is her family's financial standing. Meanwhile, Shim states that her dream is to simply live a normal life just like any other women in her 30's. 


Currently, Shim's story is spreading across various online communities. Netizens, shocked and also touched by Shim's story, are stepping up to help Shim by contributing to the donation fund opened by the producers of 'Capture that Moment - How is that Possible'. As of now, more than 200 million KRW (approximately $180,000) have been gathered for Shim's surgery costs. 








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YueYuu Sunday, October 23, 2016

oh shit shit shit. It's a miracle she's even alive! Is there something left to do for her?

YueYuu Sunday, October 23, 2016

how to donate?

seulgipringles Saturday, October 22, 2016

I hope she can cured soon :(

Funky_Angel Saturday, October 22, 2016

Everyone is the same on the inside... So sad that a normal woman is trapped inside a body she can't control. I wish her a safe recovery...

RimmieMeli Friday, October 21, 2016

I hope she  can cured soon

misskkot Friday, October 21, 2016

i hope she can cured soon and back to normal again :(

ly3330 Friday, October 21, 2016

may god touch upon her soul and help her heal. in my eyes, she is absolutely beautiful. she never asked to be like this. all she wants is to live a normal life. I am so happy to hear that good hearted people are stepping in to help this woman. lets me know that there are still kind hearted people in this world <3 i shall pray for her

Asianfan678 Friday, October 21, 2016

I hope she is cured soon and I would love to donate but I am broke :(

Asianfan678 Friday, October 21, 2016

And by that I mean I don't have any real money right now. Not that I am literally broke

zergelultor1 Friday, October 21, 2016

hope people donate very a lot so sad

Fableinexile Friday, October 21, 2016

The human body is amazing and terrifying, how could such a thing be possible? and how can someone still be alive under such conditions? the human body is so strong and weak at the same time.

Gallifreyan7 Friday, October 21, 2016

I've never seen such a bad case of that illness. OMG. I have no word. I just hope the surgery will be successful.

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